THE HAEMOPHILIA SOCIETY

Andreea's fundraising page

Andreea Weisl-Shaw

Andreea Weisl-Shaw

My Story

I was lucky enough to get a ballot place in the London Marathon, for what will be my first time ever running this distance. This is very exciting in itself for me, as barely a year ago I wasn't a runner at all, I am now passionate about it, run most days and have made lots of running friends. 

However, I have chosen to dedicate my first marathon to fundraising for the Haemophilia Society. This is because I am passionate about raising awareness of this lesser known, but potentially very serious condition, as well as of the great work that the Haemophilia Society do. Haemophilia has affected our family deeply, and I am running for my son, Noah and in memory of my father.

Noah was diagnosed with type A haemophilia (factor VIII deficiency) at age 6. Although his case is mild, it still impacts on his life: he is not allowed to take part in contact sports, he has to be mindful of his 'special blood' despite his young age, and he has to attend regular hospital check-ups. And, of course, he faces the bigger risk of life-altering longterm consequences should he ever have an accident that leads to bleeding, internal or external. 

Noah is fortunate, because he is under the care of the brilliant consultant team at Addenbrooke's Hospital Cambridge, and he can also rely on the Haemophilia Society for support. My father was not so fortunate, however: haemophilia is much less understood and accounted for in Romania, where he lived, and we sadly lost him last year due to the mismanagement of his condition. The wrong medication caused him to suffer from internal bleeding, and the lack of factor VIII in his hospital prolonged the bleeding and led to complications that cost him his life. 

Although I had only recently started running when my father took ill, he was greatly supportive of it. I would like to believe that he would have been proud that I am now fit (and keen) enough to run a whole marathon. Therefore, I will be running in his honour, and also for Noah, because I know that with the right research and medical support, Noah and those who, like him, are affected by haemophilia, need not fear such bleak consequences, but can live a full and fulfilled life. 

263%

Funded

  • Target
    £4,200
  • Raised so far
    £11K
  • Number of donors
    83

My Story

I was lucky enough to get a ballot place in the London Marathon, for what will be my first time ever running this distance. This is very exciting in itself for me, as barely a year ago I wasn't a runner at all, I am now passionate about it, run most days and have made lots of running friends. 

However, I have chosen to dedicate my first marathon to fundraising for the Haemophilia Society. This is because I am passionate about raising awareness of this lesser known, but potentially very serious condition, as well as of the great work that the Haemophilia Society do. Haemophilia has affected our family deeply, and I am running for my son, Noah and in memory of my father.

Noah was diagnosed with type A haemophilia (factor VIII deficiency) at age 6. Although his case is mild, it still impacts on his life: he is not allowed to take part in contact sports, he has to be mindful of his 'special blood' despite his young age, and he has to attend regular hospital check-ups. And, of course, he faces the bigger risk of life-altering longterm consequences should he ever have an accident that leads to bleeding, internal or external. 

Noah is fortunate, because he is under the care of the brilliant consultant team at Addenbrooke's Hospital Cambridge, and he can also rely on the Haemophilia Society for support. My father was not so fortunate, however: haemophilia is much less understood and accounted for in Romania, where he lived, and we sadly lost him last year due to the mismanagement of his condition. The wrong medication caused him to suffer from internal bleeding, and the lack of factor VIII in his hospital prolonged the bleeding and led to complications that cost him his life. 

Although I had only recently started running when my father took ill, he was greatly supportive of it. I would like to believe that he would have been proud that I am now fit (and keen) enough to run a whole marathon. Therefore, I will be running in his honour, and also for Noah, because I know that with the right research and medical support, Noah and those who, like him, are affected by haemophilia, need not fear such bleak consequences, but can live a full and fulfilled life.