My Story

When my daughter was just 2 years old she received the devastating diagnosis of Rett Syndrome. Since then the charity Rett UK have provided me with support and information when I have needed it, so I always have someone to turn to even in my darkest hour. Rett UK have always made me feel that I am not alone, in what can be a struggle at times, to get the best outcomes for my wonderful daughter. I would like to raise as much money as possible for Rett UK, to give back to them, and say a huge thank you for everything they have done for me and continue to do for me in my Rett Syndrome journey. I am so grateful. I would like Rett UK to be able to continue this work for other families who are at the start of this turbulent journey Xx