My Story

I have always wanted to run the London Marathon but never actually made it through the ballot.  My friend was telling me about someone who has been diagnosed with LAM and how awful the disease is. In a crazy fit we both then decided to sign up and run for them and hopefully raise as much money as possible!

LAM disease is very rare, with only 350 women in the UK being diagnosed.  LAM is characterised by lung cysts, abnormalities in the lymphatic system and non-malignant kidney tumours.

The lady I am running for is one of the strongest and courageous people, and despite not being dealt the best hand in life she is so strong, passionate and kind. This is a truly awful disease with a massive impact on everyday quality of life.  If supporting this charity can offer a glimmer of hope of improved treatments I will run as best I can! 

Thirty years ago virtually nothing was known about LAM. Since then, clinical research across many countries has provided a great deal of information o how LAM affects women and the best ways to manage it.  Studies investigating the underlying cause of LAM have led to a treatment which, whilst not a cure, slows the progression of LAM significantly in most women.  

I am hoping to raise some funds to support further improvement of research in this area. Please support as best you can!