About us

ROHHAD Syndrome is a cruel, complex disease that severely impacts quality of life. An extremely rare orphan disease affecting approximately 1 in 73 million people worldwide. The children diagnosed with ROHHAD face a daily fight for survival and are unlikely to reach adulthood. To find out More about ROHHAD Syndrome click here.

The ROHHAD Association is a registered Scottish Charitable Organisation (SC045645). To find out more about us click here.