About us

The Tuberous Sclerosis Association (TSA) is the only UK charity fully focused on the rare genetic condition Tuberous Sclerosis Complex (TSC).

The TSA aims to provide help for today and a cure for tomorrow by:

• Providing guidance or a listening ear through our support and information services for the TSC community, including the UK-wide TSA Support Line
• Organising events across the UK and virtually for those affected by TSC, allowing the TSC community to come together
• Funding internationally-significant research into the causes, diagnosis, management and treatment of TS. We select research that has the greatest impact on those affected by the condition
• Campaigning to ensure that the TSC community has consistent and meaningful access to social care and healthcare provision

Through the TSA, the TSC community should never feel alone.