I am running to raise awareness, and well needed funds for the ROHHAD Association.
ROHHAD Syndrome is a cruel, complex disease that severely impacts quality of life. An extremely rare orphan disease affecting approximately 1 in 73 million people worldwide.
The children diagnosed with ROHHAD face a daily fight for survival and are unlikely to reach adulthood.
Raising for:
ROHHAD AssociationFunded
I am running to raise awareness, and well needed funds for the ROHHAD Association.
ROHHAD Syndrome is a cruel, complex disease that severely impacts quality of life. An extremely rare orphan disease affecting approximately 1 in 73 million people worldwide.
The children diagnosed with ROHHAD face a daily fight for survival and are unlikely to reach adulthood.
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